At first glance appear healthy, but actually suffer a 360 degrees, body aches and relentless, combined with fatigue, irritable bowel syndrome, abnormal sensitivity to multiple body parts, loss of memory, difficulty concentrating and even anxiety or depression in one out of four. They are sick misunderstood fibromyalgia, a chronic disease that affects 2 million Italians, nine times out of 10 women. Patients who are at risk long odyssey from doctor to doctor, and that before being recognized are often forced to live with the unstinting the label 'sick imagination'. Why to diagnose fibromyalgia, there are no specific tests for now. A spotlight on this state is still mysterious, possibly caused by a 'tilt' of the neurological circuitry that lowers the threshold of tolerance to pain, is a dedicated brochure from Onda (National Observatory on women's health) to all Italian. Announced today in Milan Municipality, the handbook can also be downloaded online by clicking at www.ondaosservatorio.it. "Although it may look like a joint disease - said Pier Carlo Sarzi Puttini, director of the hospital complex of Rheumatology Sacco of Milan - not arthritis and fibromyalgia does not cause joint deformity. It is a form of extra-articular rheumatism or soft tissue. This lack of changes in laboratory tests can not identify it. The diagnosis depends on the symptoms that the patient reports, and this can lead to consider 'imaginary' or unimportant. Of course it is not so. " And to handle the severity of the symptoms that warn, these patients have often also need psychological support. Or rather an "approach 'biopsychosocial' - said Riccardo Torta, associate professor of Clinical Psychology and Director of the Complex of Clinical Psychology and cancer of the San Giovanni Battista-Molinette The University of Turin - which must take into account the physical component, emotional and relational "for each patient. "For several years - remember the president of Wave, Francesca Merzagora - in the scientific world is increasingly highlighted the observation that many of the diseases that involve chronic pain tend to have a higher incidence in females. Among these has a particular relevance to the Fibromyalgia, which is therefore a priority for our Observatory. "Over the past 10 years, showed a note, fibromyalgia has been better defined by studies that have established guidelines for the diagnosis." Although the physical examination (visit) is usually normal and people can appear healthy - Sarzi Puttini points - a close examination of their muscles reveals the presence of painful areas in specific locations. "Not all doctors know about fibromyalgia, the expert adds, but" the majority of rheumatologists know how to perform the evaluation of 'tender points 'to arrive at a diagnosis. "Yet, often people with fibromyalgia" are subjected to many tests, and are seen by many specialists and are looking for an answer on the cause of their illness - said Merzagora - Questo porta a paura e frustrazione, che può aumentare la percezione del dolore". Di questi pazienti "viene spesso detto che, poiché obiettivamente non hanno nulla e gli esami risultano nella norma, non hanno una reale malattia. I familiari, gli amici e il medico di famiglia possono quindi dubitare dell'esistenza di tali disturbi, aumentando l'isolamento, i sensi di colpa e la rabbia nei pazienti" che per il dolore a volte non riescono neppure a lavorare o a coltivare i rapporti sociali. Da qui il ruolo cruciale dell'informazione, ai pazienti e agli operatori sanitari. Parola di esperti, questi malati richiedono più attenzione e un approccio multidisciplinare che coinvolga il terapista della riabilitazione e occupazionale, il reumatologo o lo psychologist. The strategy must be double action. "The frequent overlap of anxiety, depression and chronic stress in painful symptoms, including fibromyalgia - continues Cake - explains why the use of antidepressants and psychotherapy: the first to act on the components of cognitive, behavioral and relational invested by suffering, the second not only to act on the mood, but in particular to address the painful part - says the specialist - to which these drugs exert a direct action of containment "he says. But support groups, publications and Internet sites are important 'allies' for many of these patients. Because often you do not know è soli può essere già di per sé un aiuto prezioso. Molti malati di fibromialgia migliorano e sono in grado di convivere con la propria condizione in maniera soddisfacente, assicurano i medici. Urge però una migliore comprensione delle cause e dei fattori che possono aggravare o rendere cronica questa patologia, così come sono auspicabili una migliore terapia farmacologica e la possibilità di fare prevenzione. (Adnkronos Salute)
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